He is one of the BEST!

Hunter has one of the best dad's in the world!

Ever since Hunter came along it was love at first site, I remember him telling me that he never thought that he would love this little guy as much as he does (this was right after we had him and he was in the first NICU) This dad is strong, caring, loving & patient.

He has been through things that no dad should have to go through... 

I can honestly can say that we do not know where we would be today without him, he has had to make some very hard decisions with me and keep me strong throughout this past year.

We love you!!!

Love, Sam, Gabby & Hunter

Not what we wanted to hear

Hunter was seen by Wings today and what they told us was really not what we wanted to hear, but we both knew that this was coming... Let me just say first we so hope that they are wrong and he will prove them wrong! But no matter what this is God's will not ours and he is in charge. I talked to the RN on my way home and then once I got home with Hunter his doctor called from Wings also. The day started with Hunter laboring to breath again and needing some O2, I called the RN and she was on her way to his Grandma's house to check him out. When she arrived he was breathing much better on the O2, then she and one of the other RN's thought that we might want to try some Pepcid for (possible reflux issue) they are not sure but this will be another trial and error situation if it does not help we will stop using it. So in talking with both of them on separate occasions, they are thinking that this is his underlying diagnoses progressively getting worse and this is probably where he will stay till it progresses even more until...(something I don't want to think about or say!) The Wings doctor asked me if we were comfortable managing him at home or coming into the hospital, I told her we would rather be at home with him where he is comfortable and so are we and we also have the O2, monitor to check the heart rate and his O2 & the suctioning machine to keep him even more comfortable at home. She also said that if this does progress more we may want to consider some things for him to keep him comfortable.

I never would have thought in a million years before I had him that I would be having to decide what to do for my 16 month old to keep him comfortable before....I thought that I would be teaching him how to say words, teaching him to walk and get dirty like little boys do, riding in the tractor with Papa at the farm. But that is not what God had planned for him and that is okay he is perfect in every way and he has taught us patients, love, to not be selfish, and that we can overcome whatever is thrown at us. We are also a lot closer to God since he has come along, it is not that we weren't believers it's just now we see his work and that we are also doing his work with Hunter.

We were meant to have this little angel that God blessed us with!!!

Again we are hoping that they are wrong and he will prove it and get through this soon and get back to his old self. But we still have to remember that this is not our plan and this is out of our hands and in Gods hands no matter what we love him and will cherish every moment we have with him, we could not imagine our lives without him even with all of his challenges he has, we still get those little grins every now and then from him that make us so happy to see...So gorgeous!

Please keep our little angel in your prayers.


Love,
The Isaacson's

He's my son...

This is a song that Nick and I relate to in our life with Hunter. If you have a moment please click the link below to listen, some of you may have already heard this one (warning have a tissue ready).
http://youtu.be/VgEDOOOi2r4

P.S. Hunter is still not feeling well and has been running a temp again today, so we will be going to Children's to see his Wings doctor to see if she can shed any light on what this might be.

XOXO,
The Isaacson's

Swan Farm Pictures

This is how we spent our Saturday afternoon at a Swan Farm it was absolutly gorgeous and the pictures will show how gorgeous! I also have to say a BIG Thanks to the family that owns the farm for letting us come see it and spend the afternoon there.

Feeling a little hopeless?

I know that sounds bad coming from us, but today's appointment with Hunter's doctor after we left that is just the way that we felt. We started off the appointment talking about Hunter's seizures and how he has been having more & more and it just seems that the new med has not been doing the job on controlling them along with all the other meds. In the midst of all of us talking Hunter fell fast asleep, then we went onto some other options to control his seizures.


(Here's the list)

1.Go up on the Febotal (new med) again.

2.Surgery to put a med into his body that calms the nerves (to be totally honest can't remember the name because all I heard was "surgery" and it made me freak out! Because of what happened the last time he had surgery. Well the odds on this working for him are not very good & it could take up to a year or more for us to see any results from it "if any"!

3.Keto diet - that we have already decided not to do because all the risk with it & from what we have heard from other families & some other good sources of ours.

4.More meds! His doctor also said that the more meds we add the lesser his chances of seizure control.

So can I say we are feeling a little hopeless on getting his seizure fully under control.

Okay so you know how we told you that Hunter fell fast asleep while we were all talking about are limited options on seizure control. The doctor wanted to take a peek at him & and make sure that everything else on the little guy looked good. Well....Hunter woke straight into a pretty rough seizure in front of her and it went on for a good 3 - 3 1/2 minutes and we ended up having to give him his ER drug (doctors orders) because she explained to us that what he was having was a cluster of seizures it started with his lock up type then onto mouth the movements then into him throwing himself forward better known as infantile spasms. We are glad that he had the seizure in front of her so she could explain that this was not just one seizure but this was multiple.

We also had no new news on all the research that they have been doing but she said that she was going to contact them this week to see if they have anything more to tell us.

All we can do now is love him and do all that we can for him to make sure that he is comfortable and happy! No matter what he is the best thing that has ever happened to us and he is such a blessing we are also still very blessed to have him still here with us.

Love,

The Isaacson's

Had to post both!

These are 2 little video clips of Hunter playing with his V-tech laptop "one of his favorite toys" to some it may be simple for them to touch a button and they figure it out pretty fast on how to play with it, but with
Hunter this took a lot practice learning how to push the buttons to make it play music. Hunter since his 1st birthday has been learning how to play with this toy that makes him very happy and he usually plays with it every night.
The reason I had to post both was one is pretty good and you can see how he hits the buttons and the other one is just too dang cute because he gave the biggest smile right in the camera, sorry I am a proud mama that loves this little man and those smiles that he gives just make me melt!
Enjoy the little video clips, also sorry I am not to good at holding the camera still.

Adorable Hunter



Sporting new PJ's




Taking over Daddy's recliner!



Showing some teeth



He was Mr. Sleepy head on Sunday afternoon.