This week and weekend has been pretty rough for the little man!
He has been needing a lot more suctioning and his seizures have been the same. Friday his Wings RN came out to see him and said that he sounded and looked great...well that turned for the worse in a matter of hours he started running a little fever that night and looked like he was not feeling to well Nick was up with him half the night suctioning him out, I woke up with them early that morning and he still was not doing the greatest. The whole day yesterday he slept, so he was asleep for about a straight 14 hours he finally woke up fully around 9 PM last night then I took his temp and it was around 99.3 gave him some Tylenol and the rest of his meds and about another hour later he was out again.
Not only were we having those issues he only peed twice yesterday...UGH my stress level is pretty high!!!
Okay this morning I woke up to hear him breathing pretty hard I get him suctioned out and he was doing a little better, next I checked his temp and it was 100.9...UGH again raise that stress level a little higher. Gave him some Tylenol and he went to sleep. I called the Wings RN and she said to cut back on his fluids because his tummy maybe getting to full and it maybe coming up and going into his lungs...ok more stress and confusion??? I guess I am confused because he is not peeing and we are cutting back fluids? I will do as she says but that does not mean that I have to like it?
Hoping that this day gets a little better and we don't end up back at Children's, but if have to we will...Because we will do anything for this little man!!!
Please keep Hunter in your thoughts and prayers...thank you!