We should be going home shortly!
We are all so ready to have him home...soooo tired!
He has been tollerating his feeds we are trying to get them down to 1 hr feed times, they just want to make sure he will handle it.
They have been giving him Miralax with 2 feeds a day BAD IDEA! Little man has went allot! So I say once a day every other day...LOL!
They are sending us home with a suction machine (so so so so glad that they are) His congestion is the worst and this little machine make the world a difference for him.
We had a pretty good night last night except the nurse was mistaking his Infantile spasms for seizures and she treated it with the ER drug...Ugh! That drug just makes him so sleepy.
But I am hoping with that little dose we will have a quiet day and night with no seizures.
We have a follow up with his pediatrician on Monday and we will be meeting with Palliative Care soon (hospice).
Another day in Holland and loving it!
Nick, Samantha, Gabby & Hunter Isaacson